WE'VE BEEN GOING THROUGH THE TESTING PROCESS TO DETERMINE WHAT THOSE QUIrKS are TELLING US about her. WE've HAD OUR SUSPICIONS BUT NOT BEING SPECIALISTS WE DIDN'T KNOW FOR SURE.
During the last week of spring break and after years of counselling, testing, forms, questionairs, more testing, blood work, waiting and waiting, and waiting, interviews and one on one sessions; we finally have a diagnosis.
A DIAGNOSIS DOESN'T CHANGE WHO OUR CHILD IS. SHE'S AMAZING, funny, focused, creative. She's a story teller and a creator of vast worlds and universes with peoples and creatures populating them. WE LOVE HER TO BITS. The diagnosis doesn't change any of that. at this time I'm not going to share what the diagnosis is here. what I've shared above pretty much nails it.
What the diagnosis does is GIVES US A LABEL that people who don't know her can readily identify with right away; the label will give an explanation for WHY SHE MAY BE INTERACTING OUTSIDE OF THE NORM. WE HOPE THAT THE LABEL WILL BE AN INTRODUCTION AND THAT SHE WILL NOT BE BOXED IN BY IT. SHE'S SUPER HIGH FUNCTIONING, AND just like everyone on the world CAN'T BE defined by one single thing.
I am not naive enough to think that it's all going to be smooth sailing with a label in our lives. there are going to be people in her life that won't look past the label and dismiss her outright as nothing more than her condition. some of her peers will use it in a negative way and be hurtful. For me the main thing will be that we now no the right words to use and what tools and skills we need to help her be the best person she can be.
right now being able to do that for her is more important than the possible negatives. I say possible because I've been watching the younger generations and how open and inclusive they can be. I'm hopeful because of those people and I believe that with our diagnosis those people are going to be a part of our lives much more than if we were a more neurotypical family